07-09-2006, 13:12
I met a friend here, she has a girl with cerebral palsy (rather light, she walks and runs, but her legs are "dragging"). And I must also say that the mother does not recognize her daughter’s illness, she believes that she is playing the fool, that she can walk normally and also gives her butt for it: 010:
Mom signed her up for choreography at DDT. I can imagine what Atinamama:001 would say: but again I'm worried about psychology. Ordinary children are engaged there, they perform at city dance competitions What is Ela to do there? She will not be able to master a single position, a single element, but she is almost 6 years old and she already understands a lot of things. Will the "blind" mother develop a bunch of complexes (like your humble servant: 008 :) with her daughter and will this pampering bring real harm, because the teacher is not an exercise therapy doctor!
I directly asked Elina's mother about the purpose of such classes, to which she answered me "let her develop her clumsy legs." I could not say anything more - my tongue was taken away.
07-09-2006, 13:35
Hmm, mom's statements are just awful.
And about the complexes - it probably happens in different ways, I have long wanted to tell an example that made an indelible impression on me. At the dacha on the way to the beach we have a ditch, usually cyclists cross there on foot. Mom and daughter, a teenage girl, are going. Before the ditch they get off their bikes, and then it becomes clear that the girl has cerebral palsy, she walks with difficulty. Mom crosses the ditch, it's the girl's turn. I close my eyes - it will fall! The girl falls, calmly (although with difficulty she rises), climbs out of the ditch and leaves. I still admire the endurance and calmness of that mother, who apparently does everything so that the child considers himself ordinary. Aleksin had such a story, "The division of property", it seems - there was such a grandmother.
07-09-2006, 15:08
And I am for. For choreography. And in general for everything. Music, dancing, physics. Skorbun said that in order to learn how to run normally, you need to run A LOT over rough terrain, on sand, up and down. Did they take her? Great. If she doesn’t master the position, the Bolshoi Theater will survive, and the girl, perhaps, will benefit. With our overprotection, we sometimes make things worse ourselves.
07-09-2006, 15:46
Ordinary children are engaged there, they perform at city dance competitions, what should Elya do there?
Mmmmmda .... strongly said. no words.
And what do children with cerebral palsy do in a public school where Ordinary children study, and the child runs with everyone at recess, but holding on to a walker, and sitting at the same desk with an ordinary child studies, writes, albeit clumsily, but writes, tries .. Because he likes to be with everyone, study with everyone and feel like an ordinary happy child. He is respected by classmates for his inner strength. And not to sit in 4 walls at home learning, because he is not like everyone else, and to accumulate complexes in himself. I told this about my daughter.
And that MOM, she is not blind, she perfectly understands the seriousness of her daughter's illness, she admits, believe me, but why should every "inquisitive" mind show what she is going through.
And the choreography will develop in the girl a sense of rhythm, a sense of self-confidence, harmony and endurance. And it doesn’t matter that the girl will not dance like many others, although time will tell, the main thing is that the child will do what she loves in the circle of children.
And your mother answered you not out of malice at her daughter, but out of malice at people like you, that you’re interfering in your own business. (Sorry for the harshness of the statement) Or are you a psychologist?
For clapping on the pope, here she is not right.
And I’ll enroll my daughter in the choir, she likes to sing, she has a voice, and it doesn’t matter that she can’t stand herself, at first we will sing while sitting on a high chair.
How much more I want to say, but the emotions are over the edge, I'm afraid I'll switch to piii-iiiip. For this I say goodbye.
07-09-2006, 17:22
Regarding the choreography and cerebral palsy-
And I am for. For choreography. And in general for everything. Music, dancing, physics. Skorbun said that in order to learn how to run normally, you need to run A LOT over rough terrain, on sand, up and down. Did they take her? Great. If she doesn’t master the position, the Bolshoi Theater will survive, and the girl, perhaps, will benefit. With our overprotection, we sometimes make things worse ourselves.
PPKS
If the teacher is not against the girl’s classes, I think that the benefits will be huge. Both in terms of physical and in terms of socialization, etc.
And I don’t want to discuss my mother: 005:
Bell
07-09-2006, 17:42
They wrote about hyper-custody right here. Here they laid tiles in the bathroom - a mother and her 30-year-old son, deaf. An absolutely normal man, well, he doesn’t hear, well, he speaks badly, well, nothing! And my mother talks about him as if he is an unintelligent child, “I decided”, “I want to” .... I became so sad, very scared that I myself would be like that and ruin Styopka all my life ...
No, let him go and DANCING!!!
07-09-2006, 22:10
Yes, imagine if you tell a child that you are inferior, you will never be able to dance, play volleyball, roller skate, etc., etc. Or inspire him - you can EVERYTHING you want, you just have to try, then your "clumsy" legs will straighten out. And in what statement do you see the planting of large complexes?
08-09-2006, 09:55
Peace-friendship-chewing gum:flower:
I didn't mean that at all. For example, with our diagnosis, we can’t have a pool. Now imagine that I do not recognize the disease and take the child there. And so that he does not drown, I do not allow him to swim, I just put him on a bench in a full pool uniform. His feelings?
And for integration, for communication with healthy children, there are a lot of other interests - the choir is wonderful, music in any performance, drawing, mosaic panels, horse breeding, and it’s impossible to list everything. So why ask a child a deliberately impossible task?
08-09-2006, 10:57
08-09-2006, 11:25
I have a friend girl (9 years old) with a diagnosis of cerebral palsy. Spastic left-sided paralysis. The form is severe. + ZPR.
Two years ago, I helped them get into the karate section, where the coach is a Human. The girl now has a yellow belt and competes. And you have to see her face and smile...
Sasha studied in WUSHU from the age of 7, then the instructor changed, and they stopped taking him ...
Of course, we need to sing and ride a horse!!!
And on the priest (well, if only on the priest ...) I can still give, when there are no forces!
TanNik, convinced! We'll be doing.
I ask the moderators to close the topic.
08-09-2006, 12:28
Why close?
The topic is very interesting for many, I always rejoice when such topics appear!
Tamara, you are just great for talking about what worries you!
So it is necessary, otherwise I, too, 100 times in thought: should I write about my experiences or not?
Do you think who needs it...
And then you look: still as it is necessary!
Bell
08-09-2006, 13:17
Well, after all, you yourself write - if you can’t go to the pool. Well, how can it be impossible to dance? Dancing is joy and pleasure, it may not be a question of a professional career as a dancer :)
Vitaminka
08-09-2006, 13:18
The girl can walk and run. Do you think she won't learn to dance? It is not given to any of us to know whether she will be able to master all sorts of positions there, if she wants to, she can. Let her dance for her pleasure, her legs will straighten, and the back will be and the figure will be beautiful. And her mother is well done!
08-09-2006, 15:32
About the pool.
The task of our doctors is to intimidate my mother, otherwise something might not work out. We went diving for several months EVERY DAY. Then we got to Zemledelcheskaya - you can’t dive, they told me you have a bad EEG. All my arguments that everything is in order were rejected - if something happens to you, WHO WILL RESPOND? I said that I will answer, I will write any receipt. We were allowed into the pool, but without diving. When we returned to the neurologist Emelyanov and said that we were forbidden to dive, he was very surprised, he said that he did not see the connection. But he himself forbade us because of the EEG and heating pads, and electrophoresis, etc., etc.
Now we are ordered to do an EEG, otherwise they will not let us on the vibrating chair. It's so funny to me! We "vibrated" at Skorbun's for 2 hours a day.
In short, their business is to scare, and ours is to raise children!
I, Tamara, would go with the child to the pool, make sure that he does not go like a stone to the bottom, especially since, as I understand, you have seizures at night. You will not send him to the open ocean. Yes, you need to look after the child, but why not look after others? I believe that everyone should be able to swim. few things in life...
And the topic, of course, touched a nerve. After all, we all dream that our children will sing, dance, swim, learn!
Dimka's mom
08-09-2006, 21:01
Yes, girls ..... It's good that you create such topics. So I read it and realized that in many ways I was wrong. Well, I always say that you can’t do this, and this too. And Dimka told me: "I want to do karate" It's impossible! They fall there. "I want a bike" - You can't! You fall, you hit! He says "I want to go to origami at school" - You can't do it again! you get tired of the school load, and also origami.
And now I understand, it's not right. It is necessary to grit your teeth and allow, so that in no case would you think that he is not like everyone else! Everything, since Monday we go somewhere to be written down. Well, let him be tired, but he will not feel flawed. Through this, perhaps, such children can be treated.
08-09-2006, 21:41
The point is not only that they are “treated” and not about “being like everyone else”, but that instead of a multiplication table and reading aloud “to the point of stupefaction”, it is better to teach a child to fry scrambled eggs and cook porridge in the morning ... So dancing and karate is "Cooking porridge" just a little bit in a different genre ...
Do you understand?
(scientifically it is called "social adaptation")
08-09-2006, 23:56
But sometimes we choose to be afraid, for various reasons unrelated to the condition of the child. Sometimes this is a family algorithm, sometimes the transfer of their childhood fears to own child. Sometimes it's compensation for feeling guilty about something, eg, "I'm a bad mother." Sometimes I'm also lazy, because it's very hard.
10-09-2006, 23:53
11-09-2006, 00:42
And for me, girls, it was like this: I brought my girl, who, among other things, has motor awkwardness, problems with coordination, clubfoot and general lethargy, to choreography - they made it clear that she was not promising. She took me to the circus studio - they said she made a mistake with the door. Us better would on LFK. Came to the curly - mine can't perform most assignments. The coach is obviously not happy ...: 005: Since then I have been taking her to exercise therapy and to the Needlewoman club. I'm so fucking sensitive. I'm afraid to run into this attitude again. Probably you really need to be more persistent and look for someone who will take on such a child.
Probably should.
Since childhood, I have been very awkward, coordination is nowhere (no special diseases, just kind of bad heredity from my mother, but she had better + rickets + I don’t know what myself), I was sick a lot, there was a release from physical therapy, then somehow I came to the class at 5m - the teacher told me "you won't get higher than a deuce" for me. then something else .. well, I had a solid triple in physical education (in the certificate there was one triple and one four), and at the institute this was a bad thing (in the test week everyone passed mathematics and physics, and I did physical education), but I learned to ski well (already at the age of 25), and I also learned to swim at the age of 22. Nothing, it turned out, was so terrible.
And my heart skips a beat when I'm in Nastya's characterization for last year in the garden I read "cleverly hits the ball" and something like that ..
Here, girls, what happens when a seemingly healthy child with minor problems (asthmatic bronchitis, rickets, poor coordination of movements, not visible to the eye) is protected from what the soul does not lie to .. and she does not lie, es-but, to what doesn't work.
11-09-2006, 09:39
And for me, girls, it was like this: I brought my girl, who, among other things, has motor awkwardness, problems with coordination, clubfoot and general lethargy, to choreography - they made it clear that she was not promising. She took me to the circus studio - they said she made a mistake with the door. Us better would on LFK. Came to the curly - mine can not complete most of the tasks. The coach is obviously not happy ...: 005: Since then I have been taking her to exercise therapy and to the Needlewoman club. I'm so fucking sensitive. I'm afraid to run into this attitude again. Probably you really need to be more persistent and look for someone who will take on such a child.
How unlucky you are. Wherever I brought my child, explained the problem, everyone was ready to deal with him. Unless, of course, these were paid classes (maybe that's the whole point?).
On this topic. Cerebral palsy at a dance is like my hearing-impaired child at music school. And I wrote it down there. And we almost already went, only now we got quite seriously ill. And I began to lean towards waiting another year. Although there are no problems with speech, and he can sing songs, he has never studied in a group, he can get confused, not understand what they want from him, close up and not want to do something. And so, if the child wants to dance - why not?
11-09-2006, 10:03
What do I think .... If the girl really enjoys dancing, so what's the question? And if not, if not for joy, then the girl will inevitably have complexes simply for the simple reason that the mother does not respect her personal boundaries and imposes difficult and humiliating schemes on her. It all depends on the specific child and mother, there are no "generally". It's not about the choreography, it's about mom. And if you're lucky with a teacher, it can turn out interesting. Chance - he lurks in various secret places ...
Tamara, why does the girl passionately want to swim? If yes, then convene a council of three experts top level and ask them if the child can swim and how. Do you like to swim yourself? It is possible after all and together, to be calmer.
I didn't think the topic would be so touchy. We, special mothers, are probably very similar - in one thing, we want our children to be ordinary, or at least seem like that - for the whole society and for ourselves.
As for the girl - her mother does not ask her if she wants to do it or not. You go and everything. Implements own program without being interested in the desires and capabilities of the child.
Mine asked for the pool, of course, but I can’t say that passionately. With a pool I have in principle complicated relationship. We live next to him. And every year someone drowns there due to an oversight. And these are ordinary children and not small ones - schoolchildren are engaged. And bleach - I foresee harm to health (because of this I could not walk - I was very sick from bleach). And I'm afraid of the deep.
So if we go, then together in some fitness club.
11-09-2006, 17:39
I would give it, provided that the coach / teacher is adequate and agrees. Children can do a lot, but adults often do not want to mess around.
For example, it didn’t work out for us with the pool - we politely asked, because. "Hinders everyone, cannot and does not have time." Yes, okay. And without them they learned to swim :)
This year I want to attach it somewhere, maybe they will take it ... Antokha dreams of dancing. And about figure skating. Everything, in fact, is not for us. But - we will look for dances :)
11-09-2006, 19:39
Boys are always missing at the dance. They go to snap :) The main thing is that the child wants to.
I also think about dancing. Years from 3...
11-09-2006, 21:04
Yes perishing, on dances boys in big favor!
In Anichkov Palace, 5-year-old girls are taken with a couple-boy ...: 008:
Everyone is actively looking for BOYS!
http://www..php?t=59580
It was on this day that Anna Gorchakova, world and European champion in wheelchair dancing, held a master class at the Minsk Children's Modeling Agency.
The first children's models on wheelchairs in the history of Belarus - an excellent result joint project Youth public association"Revelation" and modeling agency "Kids Podium" - were preparing for their first show "Silver Wheel".
Of course, we were very worried. Since Anna Gorchakova is a psychologist, and with a huge performance experience, she told girls and boys how to deal with excitement on stage.
- And at some point we felt that we lived for each other - Anna dreams of own school dancing, parents of children with cerebral palsy - that children realize themselves not only in the modeling business, - says Olga Stefnyak, mother of twins.
- We came to the idea that we want to dance!
Probably, we need to take a step back and introduce readers to the heroes of this material.
The Stefniak family: "The impossible is possible"
Twelve years ago Olga Stefnyak from Minsk heard from doctors everything that parents of children with severe cerebral palsy have to listen to. Including advice to leave the "plants" in the hospital and not derail your young life.
Olga did not believe the well-wishers and, being a graduate art school, began to develop the abilities of girls with the help of art. At the age of two or three, Yulia and Lena, together with their mother, painted with foam on mirrors, semolina on the floor, glazed curds on the walls ... Nobody noticed when the scribbles began to turn into works.
Now the Stefnyak sisters (Yulya is in a wheelchair, Lena walks by herself) combine their studies in the 5th grade regular school with classes in 3rd grade art.
Last year, the gallery of the artist Leonid Shchemelev hosted their first personal exhibition"What color is joy?" Since then, so much has been accumulated that it is time to create another exposition.
Concerning modeling career sisters, then it began with Lena, who went to a children's modeling school. Julia, seeing the fashion show for the first time young models, terribly offended by my mother:
- You brought me to the show, realizing that I would not achieve this in my life ?! I'm in so much pain!
Why do you think you can't get on the podium? Olga asked. – You can!
This is how the cooperation of families from the IPO "Otkrovienie", raising children with cerebral palsy, began with modeling agency"Kids Podium".
Special children were taught the intricacies of defile, stylists and make-up artists worked with them ... And in December last year, the Silver Wheel swept through Minsk - the first fashion show in wheelchairs in the history of Belarus.
The “Wheel” left a mark: the press warmly responded to the event, and the Belarusian designer Apti Eziev started developing the first collection of clothes for wheelchair users.
The Stefnyak sisters inherited their mother's amazing ability to create "out of the blue." Recently, for example, they staged a horse show at home: they sewed clothes from ribbons for plastic toys, picked up music, and developed movements. To make the action memorable, they attached button skates to the figures and moved the show to a round ice arena. It was great, only every two numbers had to freeze the ice: the arena could not withstand the room temperature and the intensity of emotions.
Girls not only dance, draw, sculpt, sew, work with beads, but also manage to write fairy tales and put on performances based on them.
“Once we went to our grandmother, and saw a dusty puppet horse in her closet,” says Lena. – Grandmother allowed her to pick up, we played with her in the car, and began to compose a fairy tale about a horse whose name was Jessica.
Horse Jessica adhered to the same free views as Coco Chanel: she painted her lips brightly, put on large earrings and went out to pasture in this form. All the horses were indignant “What is she doing!”, but Jessica did not listen to anyone.
It seemed to me that the character of Jessica was written off not so much from Coco Chanel, but from the creative and independent girls themselves. They recently decided to congratulate artistic director dance school Anna Gorchakova happy birthday. Most disabled girls would simply ask their parents to buy flowers for their favorite teacher.
Yulia and Lena wrote texts, picked up photos and made up a magazine about the dance school. In the meantime, they created two paintings from wool and sold them via the Internet, organizing an auction. And then they found a confectioner who made a birthday cake according to their sketch.
The girls asked their mother to pick up the magazine printed on a color printer. And the older brother took the paintings to the buyers - to the horror of Olga, who learned about everything after the fact.
To my surprise, the sisters do not consider their education close to completion.
- I would like not only to dance and draw, but also to play the violin, - Yulia meekly remarked.
“But I like the piano more,” Lena clarified.
“They will play,” Olga promises. - If there is a desire, you need to have time to learn everything, and hone something to professionalism. Julia and Lena are not going to close themselves within four walls and live on a disability pension.
Anna Gorchakova: “Children with cerebral palsy have a huge potential”
Less than a year ago, at the first lesson of the Dar dance school, Olga Stefnyak took up her head. Children, trying to tap out the rhythm, did not fall palm on palm: it was difficult for them even to simply bring their hands together in clap.
“Usually coaches do not take children with cerebral palsy,” Anna Gorchakova confirms. - A dancer with a spinal injury has half of his body healthy, you can work with it. In children with cerebral palsy, each muscle is capricious in its own way. Their slowness common feature: the nerve impulse passes more slowly than in other children.
World and European champion Anna Gorchakova once learned to dance on her own: there was no one to take lessons from. For the last ten years, Anna has been working as a rehabilitation therapist and psychologist with various categories of people with disabilities. Experience allowed her to notice a plus where many colleagues would see only a minus: yes, children with cerebral palsy are difficult to learn. But the more you invest in such a child, the more noticeable the progress in his physical abilities.
“This is a huge prospect: it is worth taking care of such children,” Anna is sure.
“I don’t put forward ultimatums in my life, but here I set one condition: the children will dance on their own,” says Anna. - Some mothers said: “This is unrealistic, how can they even do something on their own?” Children with cerebral palsy, even active-type strollers - those that they could drive - are not allowed until the age of 14. All they are allowed to do is sit motionless in a wheelchair pushed by an adult. Moreover, the stroller for children with cerebral palsy of the Minsk Prosthetic Plant weighs 29 kg. Even if they wanted to, the dancers could not move such a place.
First of all, the parents began to seek to ensure that the future artists were given active-type strollers - the Belarusian "Cheetahs". We collected documents, stocked up on a petition from a public association and went to the committee on labor and social protection to prove that our children want and can dance.
They say there was a lot of distrust and doubt. But when Anna, radiating charm and confidence, fluttered into the office of officials, the issue was finally decided in favor of dancing.
There are three dances in the repertoire of The Gift, three more numbers are in development.
- Why so few? Anna preempts the question. - Yes, because in April-May we performed in front of the audience nine times. We hold seminars, talking about the possibilities of children with cerebral palsy, we speak at schools, we took part in the republican festival children's creativity and together with dance group Klyaksy held a dance flash mob in Gorky Park. There was no time to train!
Anna has a principle: all children on stage should be in the spotlight. Here is Mark Kudryachev - an emotional boy, with a lively expressive face. Best Artist the role of Lovelace is not to be found. It doesn't matter that Mark's physical abilities are still very modest: the girls will dance around him. Or Leah Gerasimenok. An artist with a rare for Belarus oriental type appearance needs an oriental dance.
At the numerous requests of children, hip-hop will be introduced into the program - by the way, no one dances it in wheelchairs. In the spring, Belarusian children were given a master class by hip-hoppers from Philadelphia.
“Children have a lot of training,” says Anna. - On some, we simply develop physical capabilities, focusing on weaknesses. On others, we study compositions or practice classical choreography- Wheelchair ballet. I want children to have fun and get everything they need for physical and psychological development.
Every child has a breakthrough in physical condition in six months of active dancing.
“When the children began to dance, Yulia could not move from bed to a wheelchair on her own, she moved in a wheelchair only with the help of an adult,” says Olga Stefnyak. “Today she is changing buses, driving where she needs to, parking confidently. The speed and accuracy of movements developed, the back straightened, the arms strengthened. A year ago weak right hand Julia could not even take a spoon or support a cup, and now she draws with this hand and controls the carriage in the dance.
By the way, the girl Yuliya Sagaydukevich, whose mother once said “This is unreal!”, balances in the dance, holding the stroller on two wheels - with a beautiful straight back and one arm raised high.
The art of changing the world
Now no one remembers that the first years of study at general education school for Julia and Lena were very difficult. Special children spent most of the study time in the defectologist's office. Peers did not seem to notice their presence at school and passed by on the street. And once the first teacher, taking the children for a walk, generally forgot Yulia in the classroom. I had to leave for home schooling: the girls told their mother that they would not go to school anymore.
“Fortunately, the teacher who came to our house returned the children to school, and by that time another teacher was working with the class,” says Olga. - I had to take the initiative into my own hands: the girls prepared some surprises, souvenirs for classmates ... Gradually, the class became friends: the dancers invite classmates on tours and excursions. Thanks to children with cerebral palsy, some ordinary students also became artists. Members dance school invited friends to prepare a number for the republican competition "Vyaselkavy Karagod" together.
- When we asked who wants to dance with us, the whole class raised their hands, - say Yulia and Lena. - I had to arrange a casting, choose the most reliable partners. There were even tears: one day we return home, and Anya sits at the entrance and cries. We ask “Anna, what happened ?!”
- I was not allowed to take out the stroller! - sobs. - You will talk, please, to be allowed.
ASTANA, April 29 - Sputnik, Sergey Kim. Armangul walks on crutches, and it is difficult for her. Because almost the entire load is on the hands, and the hands do not always obey well. For 21 years now, she has been fighting with her body every day - this is a real exhausting work. But here Armangul gets into a carriage, and she does it on principle only here, in a small hall on the attic floor of one of the Almaty commercial buildings. On the street and at home, she still prefers crutches that are heavy for movement: according to her, in order to prevent the body from getting used to a sitting position.
© Sputnik / Sergey Kim
And she dances in a wheelchair. Armangul has been practicing paradance for two years.
“In 2016, I came here, at the end of autumn. Before, I didn’t have such an idea that I would dance. I just wanted to have more friends, expand my social circle. Then I slowly started studying. And soon I began to see the result,” she says.
A little warm up to the music. It can be seen that she makes movements that are easy for others, concentrating as much as possible. But it does! Changes did not occur on the first day of classes, and not even a month later. In order to better understand what Armangul had to overcome: only after six months of daily practice, she was able to straighten her collar, which she never succeeded in - her hands simply did not rise above her shoulders.
"Suddenly I thought:" Let me try, suddenly I can ... "I was shocked - it happened for the first time in, roughly speaking, 20 years!" - laughs Armangul. Prior to that, her collar was adjusted by friends and relatives - at the request.
© Sputnik / Sergey Kim
But behind the laughter of this cheerful girl are years of confusion and even apathy.
“Once my sister took me to China. There, the doctors said that I was disabled for life, that I didn’t have to do anything. Therefore, I didn’t do anything at all for two or three years. After this news, I was shocked, because all my life I dreamed that change something, and it was not only my dream, but also the dream of my dad,” continues my interlocutor.Daken Turebekova, the girl's coach, tries to be strict in class. At the same time, it is hard not to notice: her gaze betrays some special, restrained care of a sports mentor.
In fact, the mentor Turebekova says, the story of an insecure girl who crossed the threshold of a dance studio for the first time is like a miracle - if you don’t know how much effort and time they put into their favorite business to achieve the most inconspicuous, at first glance, result.
© Sputnik / Sergey Kim
“When Armangul came, she did not immediately sit in the stroller: “I never turned the wheels!” She just sat and could not reach the wheels. I said: “Sorry, dear! Want? Let's do it!". Even reaching out to one wheel - for this it took us a lot of time! For about a month she came and sat on a stool, looked at others, compared and said: "They do, but I can't! I have a completely different diagnosis!” But I once said: “Yes, you have the most difficult diagnosis. But if you want - everything will be!" - says Turebekova.
The coach had to read a mountain of literature about cerebral palsy to understand what he was dealing with. Now, it seems, some doctors can learn her skills. She asks the ward to raise her hand up. The hand hangs halfway, but Turebekova starts tapping on the palm with her fingers - from below. The hand continues to move. Another series of tapping - a new segment passed.
© Sputnik / Sergey Kim
“I give a signal to her brain,” the woman explains her actions.
Now Armangul remembers with a smile what caused tears in the very recent past.
“I saw the results of other guys who want to change something in themselves, live a full life, and worked hard, trained a lot. Then I had pain at night. There was a period when I thought that nothing would work out. I cried. I came anyway. Because everyone here loved me, and I also fell in love with everyone. Physically, the body changes very much. Previously, sometimes, in order to take a step, I had to first fall, then get up, and continue to walk. Now I can walk completely freely, I don't fall at all, I'm proud of it. pedestrian crossing“Before, I always didn’t have time: there are different drivers, they could send them to hell,” she says.
1 / 5
© Sputnik / Sergey Kim
Actually, Armangul came to this dance studio at the invitation of the coach - she wrote in social networks. But it was more of a cautious suggestion. probationary period. Now Daken Turebekova can reveal all the cards.
“A month has passed. I thought she would leave. Many do this. Why don’t I immediately start working at full strength? it was interesting: she walks one week, walks the second, walks the third ... a month walks! And one fine day she says: "Can I talk to you? Only you honestly say: "Will I succeed?". I say, "What do you think?" She replies: "I don't believe it, everyone said it wouldn't work." They hugged and cried. Now we remember it so easily…", adds the paradance coach.
Daken Turebekova is one of the country's top coaches in this sport.
© Sputnik / Sergey Kim
Finally, I ask Armangul if she has any achievements in her favorite business.
“My main achievement is that I dance,” she answers my careless, even inappropriate question.
April 29 is International Dance Day.
27 year old boy with cerebral palsy own example showed me how to succeed in what I love. Ermek Kalymbetov from Shymkent became the champion of Kazakhstan in sports ballroom dancing in wheelchairs, in the treasury of his achievements and participation in the world tournament. How he overcomes difficulties, performs wheelchair stunts, the guy shared with.
As a child, Ermek dreamed of becoming pop singer. But health problems made themselves felt. The guy started playing sports.
"I wanted to strengthen my body and spirit. In 2009, I started wheelchair racing, participated in competitions in Kazakhstan, took first and second places. In 2012, I had my first Foreign experience- I went to Dubai for the tournament, but I did not get any place, as I came last. This made me very upset. I began to think about what else I could do, what I could succeed in. I was advised to go to sports and ballroom dancing where you can dance in wheelchairs. And since 2016 I have been doing this professionally," the guy said.
Yermek admitted that at first it was hard for him - the body did not obey, he did not get into the rhythm and beat. The guy began to doubt that he would ever learn to dance. But perseverance and daily rehearsals did their job.
"I was inspired to take part in the Asian Freestyle Championships in Taipei. I took first place there. This tournament qualified me for the World Championships in Belgium. I managed to take fifth place. I dream of winning first place in the World Championships someday I want to see the flag and hear the anthem of our country."
In addition to dancing, Yermek works in rehabilitation center for people with disabilities. There he organizes recreational activities responsible for cultural activities.
IN free time the guy is fond of acrobatics. So, once in the hall he climbed the rope in wheelchair. Now Yermek has a new goal - to climb the rope to the very ceiling.
One of the forms of group classes in therapeutic gymnastics is choreographic gymnastics, proposed by O. A. Sternik in 1970. Its undoubted advantage is the high positive emotional stress that appears in children, the desire to learn in the learning process. Approximate types of choreographic gymnastics.
1. Exercises for mastering the posture, the initial for each dance. The starting position is at the counter, in front of the mirror, the hand wraps around the rack rail, four fingers on top, the thumb covers it from below, the legs are slightly apart, the feet are fully supported, the head is in the middle position. The child must, holding the bar with his hands, lean his body back, while keeping his head in the middle position, without tilting it back. The methodologist corrects the position of the head.
The spine bends intensively, the legs should not bend at the knee joints.
Correction right position trunk and pelvis occurs with the help of acupressure.
2. Learning the elements of the squat dance.
Holding hands on the bar in the same position, the child should sit down, then straighten up. This exercise can be very difficult to master in cases where there is insufficiency of the hip extensors and large abductors of the thighs. Their uneven weakness causes the skew of the pelvis.
The methodologist corrects the movements, pointing out to the child which muscles need to be strained.
3. Elements Spanish dance: a) from the same starting position, the child, standing on one leg, slowly raises the second, arching his back and holding in this position for 30-60 s; b) from the same starting position - jumps on two legs at once. The purpose of this exercise is toe jumps. Children with cerebral palsy with difficulty, even with the support of their hands, perform jumps. Often they replace this movement with jerky movements of the pelvis without lifting the legs from the floor. The methodologist must teach the child using the passive-active method of the appropriate movement patterns; c) the starting position is the same as in paragraph b) - learning to jump on one leg. Elements of Spanish and Russian dance.
4. The child stands sideways at the counter, holding it with one hand, legs slightly apart. The opposite hand rests on the side. The task of the exercise is to maximize the extension of the spine; from the same starting position as in paragraph 3, and, when the spine is extended, the child must take a step in place to the music. The methodologist monitors the position of the pelvis and spine, correcting it with acupressure.
5. The child stands at the counter, holding on to it with both hands, legs wide apart. The methodologist makes sure that the breeding of the legs is equal on both sides.
The task of the exercise is jumping in place, with breeding and bringing the legs together.
6. Elements of Russian and Spanish dance: a) starting position standing sideways at the counter, legs slightly apart, one arm rests on the counter, the other is extended in shoulder joint and at the elbow joint. The child holds a handkerchief in his fingers. The task of the exercise is to deviate to the side, to make waving movements with a handkerchief. The turn of the shoulders should be uniform, without compensatory movements of the trunk and pelvis; b) the starting position is the same as in paragraph a. The second arm is unbent and stretched forward, the hand and forearm are in the pronation position. Under a certain rhythm, supination is performed - pronation of the forearm, hand and extended fingers at various positions of the head.
The body is kept straight all the time.
7. The child stands with his back to the counter, holding on to it with his hands laid back. The head is in the middle position, the legs are slightly apart.
The task is to hang the body on outstretched arms while keeping the head in the correct position.
8. Elements of Spanish and Uzbek dance:
a) the initial position sideways to the rack, similar to that occupied in exercise 10. The methodologist works out the click of I-II fingers outstretched hand, the arm is extended in all joints, with different provisions heads;
b) the starting position is the same as in paragraph a, the free hand rests on the side. The task is to squat to a certain rhythm, with a change in the squat pace;
c) the starting position is the same as in paragraph a. Task - squatting with maximum abduction of the pelvis back, hyperlordosis;
d) the starting position is the same as in paragraph a. The child stands completely on one foot, loading the heel. The second leg is bent at the hip and knee joints, the toe of the foot is pulled down as far as possible.
The exercise is performed on the account: "one", "two", "three"; on the count of "three" - the leg is lowered and attached to the supporting one. Then the same exercise is repeated with support on the second leg;
e) the starting position is the same as in paragraph a. Under the count: "one", "two", "three"; “one”, “two”, “three” the child stomps one foot, then the second.
9. Several children (3-4) stand sideways to the counter, legs slightly apart, holding the counter with one hand, putting their free hand on the shoulder of the person in front. Under the count of "one", "two", a step is made on the spot, then jumps on one, then on the second leg.
10. Starting position is the same as in paragraph 3; the supporting leg stands on a full foot, the second leg is bent at the hip and knee joints at an angle of 90 °. Under the count: “one”, “two”, the children unbend the leg at the knee joint by 15-20 °, holding it for 30-60 s in this position. Then the angle changes and the leg is again fixed in the adopted position.
Thus, exercises are practiced in numerous versions, designed to correct posture, vicious installations in the joints of the limbs and, most importantly, train mobility, active motor skills, the ability to switch from one movement to another (Fig. 42).
In this regard, musical accompaniment is an important therapeutic tool that promotes motor activity.
After working out the individual elements of the dance, one should move on to teaching dance, taking into account the capabilities of the child: children who can stand, but for whom it is still difficult to move, learn to dance while standing, with predominant hand movements ( indian dances), then dancing, in which slow, smooth walking can take place., again with the maximum use of hand movements, etc.
Dancing training should not be hindered by existing deformities, pronounced posture disorders. In the course of work, they are gradually corrected.
Criteria for the effectiveness of rehabilitation therapy for motor disorders
The criterion for the effectiveness of rehabilitation therapy for motor disorders is the transition from one level of motor development to another (good result) or improvement in the ability to move within the same level that the child had before the start of treatment (satisfactory result).
Allocate next levels development of motor skills, regardless of the age of the child.
1. The absence of congenital motor reflexes or their deep delay, the presence (or pathological activity) of tonic reflexes, the lack of development of adjusting reflexes, voluntary motor skills.
2. The presence of some basic congenital motor reflexes, as well as tonic (cervical and labyrinth), which the child begins to overcome. The beginning of the development of basic installation reflexes; the child begins to sit (with or without support), maintains the given sitting position, but does not stand or hold the standing position with support.
3. Only residual tonic reflexes are observed: installation reflexes extend to the upper limbs and torso. Manual skill appears. Holds the given posture while sitting and standing, but there is no torso torsion yet or it is insufficient. The development of manual skill continues, he begins to draw, to master the first elements of writing. Stepping movements are wrong. Stiffness in the joints of the lower extremities. There remains a residual effect of tonic reflexes on the muscles of the lower extremities, contractures are formed in them.
4. Positioning reflexes are developed, walks with support or walks on its own, with pathological positioning of the lower extremities, the presence of contractures and deformities (on the legs half-bent at the knee and hip joints or in case of hyperextension in the knee joints with equinovarus and valgus positioning of the feet), manual skill is inferior in connection with the pronation-flexion setting of the forearm, hands and fingers, but the child overcomes it, albeit with difficulty - writes, sculpts, draws.
5. Sits and walks alone or with a stick, with moderately pronounced contractures or in the absence of such, writes, draws without pathological attitudes in the hands, but the movements are awkward, slow.
6. Walks independently, without support, gait is normal. Arbitrary hand movements are age appropriate.
When evaluating the gradual development of the function of the muscles involved in the work indicated in Table. 4, the muscles that fix the position of the body, necessary for the performance of these works, postural reflexes are not considered.
Meanwhile, the development of these provisions by a child is as difficult as it is a necessary task, the development of which in the process of work occurs much faster and more successfully than in physical therapy classes.
Conclusion
The work to restore the motor functions of a child suffering from cerebral palsy is extremely complex and must be carried out systematically over a number of years.
It requires great patience and endurance both from the little patient and from the one who works with him. Undoubtedly, the greatest efficiency is achieved if an experienced physical therapy methodologist works with the child. However, on the one hand, methodologists of physiotherapy exercises who work in ordinary hospitals of a neurological, orthopedic, pediatric profile are far from always familiar with the section of work under consideration, on the other hand, methodologists cannot devote as much time to a child as is necessary for full-fledged rehabilitation work - 30- 40 min per day.
And, finally, 75-80% of children cannot receive sanatorium treatment or treatment in one of the hospitals every year. Therefore, in a family where a child with cerebral palsy grows up, there must be a person who is more or less familiar with physiotherapy exercises and massage.
The proposed book will help to acquire the knowledge necessary in this regard and help the child.
The main condition for the effectiveness of physical therapy is work in terms of consistent ontogenetic development of motor skills, timeliness, usefulness and rationality of correcting motor defects in all forms of the disease.
